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Quest News

January 4th, 2012:


September 29th, 2011:
They say that time flies when you're having fun and boy, is that true! We've been so busy rallying the troops and staying on top of things around here that we've been posting and updating on facebook and leaving the website a bit high and dry! A super quick recap:  Michelle Wilson and Nancy Perkins (Cooper's Mom & Grandma) flew to Boston for the annual NTSAD conference, Quester Aiden's Mama took part in the St. Baldrick's fundraiser and raised money as she shaved her head in support of her son, Quester Kayden received a new IPad and is learning all sorts of cool new things on it with all the very special applications that it has,  and Quester Braden took his FIRST STEP!!! I'm sure I'm missing a lot of in between moments, which are usually my favorites, but today we really want to introduce our newest Quester!
 
Quester Reid Smith is a power house! He's got a bunch of support behind him and a family that I would definitely want in my corner! This little munchkin is one tough cookie! Reid is currently taking on a stage 3 unfavorable Wilms Tumor.  He's been the talk of the town around the San Antonio/Schertz area and we are so excited to add him to our Quester Family!  We can't wait to meet him in a few weeks at our first Cooper's Quest field trip to Morgan's Wonderland!
 
 
If you want to learn more about Quester Reid, you can visit his caringbridge page.
 
We're working on some ideas for our next big event and also on some plans for this year's holiday gifts to our Questers!!! It's that time of the year folks! There's lots of Questing to be done!
 
If you know of someone that might be interested in becoming a Quester, please feel free to contact us, or if you'd like to support or donate to Cooper's Quest, please visit the Donate Today page!
 
In the meantime -- HAPPY FALL!
 
February 1st 2011:
The year is already flying by.
I can't believe that it's February 1st and I haven't updated you all about all of the exciting things that have been hapenning for our Questers!
Kayden celebrated her Heart Day on January 8th with cupcakes and loved ones in the park! Braden has welcomed a baby sister AND celebrated a year of being seizure free!
 
        
 
We are still selling t-shirts and Cooper's Quest CD's from the website.  Plus, we're beginning to discuss a Quester Luncheon/Meet & Greet in May. We're really hoping that some of you that have been curious about becoming a Quester might come join us for some fun and play time to get to know us better!
Thanks for keeping Cooper's Quest snuggled up close this winter season! We're looking forward to SPRING!
 
 
December 2010:
 
October 20th, 2010:
Cooper's Quest is lucky enough to join the tournament scene at the award winning Barton Creek Country Club! These may actually happen throughout the year, but our first one is THIS Sunday!
 
If you're looking for something fun & outdoors, (and oh yea, you actually enjoy the game of golf) this is a FABULOUS deal. For only $89 (plus tax) green fees, golf cart, and unlimited practice balls will all be included! 
 
 
Happy Fall Y'all!
 
October 6th, 2010:
Thankful:  for the people that support Cooper's Quest continuously and for the common ground we as a community have created in honor of such a sweet boy that is truly missed.  Thankful for the Questers that continually make me smile with their growth and their joy for life.  Thankful for the lessons that I receive daily by the people that surround this wonderful Quest!
Grateful:  for the sponsors and volunteers that helped create an "easy Sunday afternoon" for all to enjoy.  This year I posted the Quest Fest event on a few different websites looking for volunteers to come help us manage the many booths and boy did we have a wonderful response. I was happy to give the volunteers Cooper's Quest t-shirts, knowing that the next time I drive by the UT campus and see someone with a CQ shirt representing and spreading this wonderful organization I will smile brightly.
Blessed: to have people like Autumn Boukadakis (this year's Cooper's Quest Friend of the Year) and Shannon Lilie with Greenleaf Design Group (this year's Cooper's Quest Business of the Year) in our corner. These two have definitely given of their time, talents and treasures.  If you have the opportunity to see Autumn perform in your town, jump on it...she puts on a show that makes you want to seek joy in all you do.  On the flip side, if you're looking for your own wonderful graphic (as cute and adorable as our sweet CQ boy), Shannon Lilie is a magician of creativity!
Excited: that two of our Questers joined in the fun on Sunday and boy was it nice to see their smiling faces! We're really looking forward to welcoming some new Questers in our third year and exceed our expectations of creating an even greater community. (If you're looking for more information on becoming a Quester, or creating some CQ action in your area, please contact us!)
Thrilled: that we raised almost $7500.00 to be used for equipment, medical needs and happy (hopeful) moments that take our Questers' breath away. 

We would like to take the time to spoil a few of the people that helped with this event as best as we can.  So please show these businesses and friends of ours some local lovin': 

See ya soon & Happy Questing! :)

September 1st, 2010:
Well, it's September and we are 33 days away from QUEST FEST  2010! There is so much happening and lots to be celebrated. 
1.  Cooper's Quest was in the Pony Express!  http://www.bcm.edu/pediatrics/texasemsc/index.cfm?pmid=18080
2.  Our Quester Braden is having a benefit Hockey Game at Chaparral Ice in Austin on September 11th @ 6pm! 
AND
3.  We've got some great sponsors that are coming through for us during our preparations for Quest Fest! 

There will be lots more to announce in the next week or two, so keep your eyes peeled. 
Also, as always, we ask that you keep all of our Questers in your hearts and prayers. 
Happy Football Season! 
Cooper's Quest

August 2nd, 2010:
We've got big news!! It's scheduled, people are talking and magic is happening! 
Mark your calendars for: 
QUEST FEST
10.3.10 from 3 to 7pm at Nutty Brown

**Be patient, there will be a lot of information to share and some big surprises too!** 
 

July 8th, 2010:
Today marks a year since sweet Cooper got his wings.  There's so much to say, yet no words to say it.
We mark this day by remembering, by wearing bright colors and by smiling through the sad feeling in the pit of our stomachs.  In Austin today there's rain, which seems fitting, but I think I'll still go find a swing somewhere on a playground and kick my legs until I'm high enough to feel like I'm flying.  I'll close my eyes, spread my arms, and soar through the air. It'll be the release that I need, just the right kind of release with Coop.  
I know we've used this Prayer before, but I needed to read it again today, so I hope that you all will too. 


Native American Prayer
I give you this one thought to keep.
I am with you still
I do not sleep.
I am a thousand winds that blow, 
I am the diamond glints on snow,
I am the sunlight on ripened grain, 
I am the gentle autumn rain.
When you awaken in the morning's hush,
I am the swift, uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not think of me as gone
I am with you still, in each new dawn.
~ author unknown

June 27th, 2010:
Dear Coop:
Happy Birthday little man! We all spent the day doing things to be with you. Tim and I spent the day outside and in the water, trying everything we could to get the wind in our hair. We remembered how much you loved to go fast in the boat, to feel that wind in your face and that oh so contagious giggle that you would share with us.  We waited for the full moon to come out to really take it all in. You would be three today! Three! We miss you every day and we continue to be thankful and blessed for the joy and moments that you give us still. We know you're here watching over us, still teaching us the importance of living in every moment. 
Thanks for sharing in our outside adventures on your birthday. I know you were busy spending time with everyone that was spending the day with you.
Here's big birthday hugs straight to you today Mr. Man. 
We love you!

June 3rd, 2010:
There are no words to describe the magic of Friday evening at One World Theatre.  It was beyond moving, beyond extraordinary, beyond me. The night was filled with magic and a bit of a breeze that let me know that we were not alone.  The buckets were fantastic and I loved seeing how excited some of our CQ friends got when they realized what was all included in those buckets. I need to send out a huge thank you to Autumn, Ben Broussard and their bands for the incredible music that the provided. Also, to One World, a one of a kind venue that catches you off guard.  Finally, a big thank you to our friends that continue to support Cooper's Quest and join us for all of our events. What a treasure!

There are two other pieces of news to share today! 
First, we have another event for our Houston Friends on June 14th at Hard Rock Cafe! They will be celebrating their Founder's Day in honor of Police, Firefighters & EMS and have been kind enough to share a generous portion of the proceeds with Cooper's Quest! For more information visit: http://blog.hardrock.com/post/2010/06/02/Hard-Rock-Hearts-Police-Firefighters-and-EMTs-on-June-14!.aspx?theme=hrnews.
Second, we are beginning to coordinate and plan for our next Austin event -- QUEST FEST 2010 in September! If you'd like to serve on a committee and help get us rockin' for this wonderful event, please contact Nicole (nbenton@coopersquest.org) so that we can make sure you are included for the first planning meeting! We're really looking forward to all of the good fun and giggles from last year again, with some new twists this year! 

Happy Summer! 

May 28th, 2010:
It seems only fitting that we officially welcome  Aiden to our Quester Family today! Aiden Pederson is a sweet 7 year old little boy that was diagnosed last summer with a astrocytoma of the brainstem and an optic nerve glioma which has caused complications and surgeries that a 7 year old boy should ever have to deal with. 

We are really looking forward to getting to know Aiden better and to hopefully help him continue to grow in strength and love through the magic of Cooper's Quest! 

You can see a picture of Aiden on our Quester page, and you can see a lot more goodies from Cooper's Quest tonight at Autumn's show at the one and only One World Theatre in Austin!  We'll be there with the Cooper's Quest Bucket Brigaide at 6:30pm.  Buckets have been sponsored and donated by: Pat green, Amy's Ice Cream, Jim Spencer, Austin Java, Yoga Yoga, The Expedition School, Esther's Follies, Cypress Canopy Tours, Alamo Drafthouse, Round Rock Express, our very own Questers and so much more!!!  
We hope to see you all there! 

May 7th, 2010:
Happy May! It's been a gorgeous time here in Texas recently and life is good! 
I recently got our friend Autumn's latest newsletter and really wanted to share it with all of you. 
The time of year is upon us where emotions are running high. Phrases and feelings are beginning to start with, "A year ago..." and when I read Autumn's newsletter it brought back some big memories. Memories of what this Quest really was about and how we got to where we are today. 
Hey everyone,
How I love thee, month of May. 
I hope this message finds you well. 
Please continue to check out the website...we now have a blog section for the band, and we update often! http://www.autumnonline.com
We have a very important show this month! It's on Friday, May 28th at The One World Theatre in Austin, TX. 
This show will benefit Cooper's Quest.
Here's the story: Last Mother's Day, I was contacted by a woman named Nicole Benton to sing at a benefit concert for an organization called 'Cooper's Quest'. She told me about a very sick little boy, Cooper, and how his time on Earth was limited. She desperately wanted to bring the community together to raise funds to help his family. She asked if I would sing a set at The Nutty Brown Cafe. Of course! Without hesitation, my beautiful bandmates agreed to generously share their musical gifts as well. So there we played, on a beautiful May day, at the Nutty Brown Cafe...
I got to meet Cooper. A sweet baby boy, with piercing blue eyes & a sweet spirit, fighting a very big disease, called Gangliosidosis. He took my breath away. He was the reason we got to play music that day, and I am so grateful for his presence. I only got to meet Cooper once, but the power this child's spirit had on me is insurmountable. I think of him all the time.
Soon after, I got an email from Nicole about Cooper's passing. I cried. I offered my condolences and let Nicole know that if there was anything we could do to help, just ask.
Music heals. It's a fact. Please join us in a night of healing music and fun, as we connect heart-to-heart at the One World Theatre and raise awareness for Cooper's Quest Organization, to help enhance the quality of life for the little ones & their families battling genetic diseases. There will be a silent auction before the show. Then, Ben Broussard will open the night at 8pm, and then we'll play until we are ready to go to bed! It will be special, momentous, and fun. Please reserve your seats here:http://www.oneworldtheatre.org

love, love, love
love is all you need.
Autumn


Mother's Day is on Sunday and while this holiday should be placed on the highest pedestal with tremendous amounts of joy and blessings, it also makes me want to go snuggle with Michelle under Cooper's new quilt and remember.   For all of you Mom's out there:  I'll be thinking of you on Sunday (along with the Mother's in my life too), wishing you all a day filled with love and sweet breaths remembered and enjoyed by you and your little ones, no matter how big they are or where the may be.

Fly high Coops! We love you!

April 16th, 2010:
Cooper's Quest CHALLENGE:  SELL OUT ONE WORLD THEATRE for Autumn's show on May 28th!!

March 31st, 2010:
March has flown by! There's a lot of stuff in the works currently, so keep your eyes peeled and your ears open for Quest News in the next couple weeks. 
First things first, Cooper's Quest will be joining our dear friend Autumn at One World Theatre on May 28th in Austin! Please schedule your babysitters and mark your calendar so that you can join us for this very special show! There will be more information and details to follow, but I couldn't wait any longer to fill you in on this very unique event! 

HappY SprinG & Happy Questing!

February 19th, 2010:
Cooper's Quest Friends and Family:  
We would like to introduce you to Brandon Weaver, our newest Quester! 
Twelve year old Brandon, from Porter, TX, has had heart issues since birth and has been waiting for a new heart at Texas Children's in Houston since October. It is with a huge smile that I tell you, he received his new heart last night! 

For the past 4 years Brandon's father, Larry, has been working on building a new house for his family, but with Brandon's heart condition and medical things coming and going, things have been put on a hold a few times for this wonderful family.  Cooper's Quest found out about Brandon from this article that Cooper's Grandfather sent us, and immediately got in contact with Steve at Porter Fire Department to see how we could help and get involved in Brandon's fight.   Brandon has shown us an unbelievable amount of patience and strength; the kind of stuff that only Questers are made of!  

This week, Cooper's Quest (thanks to our donors), along with the Porter Fire Department and the Weaver's closest family and friends, will see to it that the Weaver's new home will receive a septic system while the house gets the finishing touches for Brandon to go home!  

Cooper's Quest is so thankful to share Brandon's story with all of you.  We we will continue to update you on his condition as his body grasps hold of his new heart. I'm sure that he is ready to get back to being a teenager and finally be at home with his family! We should have pictures to share in the coming week, and hope to be there for his welcome home party!

In the meantime please keep Brandon and the Weaver family in your prayers! 

"Normal day, let me be aware of the treasured day you are. Let me learn from you, love you, bless you before you depart...let me hold you while I may." ~ unknown

February 17th, 2010:
What a beautiful weekend to celebrate the people that we LOVE! We were thrilled to share it with Cooper on Saturday by having lunch with our Austin-area Questers.  It was so nice to have a meet and greet with good food and wonderful people!! 
Oh and we've got some big news to share:
Braden is being granted a wish from Make-A-Wish on February 27th! We're so excited that we'll be able to help and participate with the install all day and then cheer him on when the backyard wonderland is complete! 

                                             
Check out Braden and Rylee horsing around!             I can't wait to share some pictures of him hanging in his new backyard gym!


I'm hoping that in the next few days I will be able to tell you about our most recent Quester out of the Houston area...keep your eyes open for that update! It'll be one that you won't want to miss!
HAPPY QUESTING! 

January 26th, 2010:
Well we're nearing the end of January and things are moving quickly in the year 2010! I really wanted to take this time to share some of the things that Cooper's Quest was able to accomplish in its first year! Here are a few highlighting moments that collectively we have been able to assist with all because by the power of Cooper and his Quest:
  • Cooper's Quest raised tens of thousands of dollars for children of fire fighters, police and ems that are in need of assistance due to genetic, rare and even unknown circumstances.
  • Cooper's Quest was able to assist its Questers with physical and speech therapies,  including hippotherapy, new and improved equipment and toys.
  • This holiday season, Cooper's Quest was also able to give to a few children that had been nominated but had not yet applied to be Questers. Thanks to our wonderful donors, this allowed us to reach out to some possible Questers and surprise a few of them with some holiday cheer!  
  • Cooper's Quest was able to send a Quester and his family to a national conference in order to continue to learn, share and experience with other children fighting his specific disease.
  • Cooper's Quest held 2 very successful music benefits in Houston and Austin, that not only raised funds, but raised awareness and promoted unity among us.
Cooper's Quest granted wishes, held hands, cleaned carpets, smiled, cried and became better friends with their Questers this year.  We are continuing to promote Cooper's Quest and would like to take this moment to remind you that if you know of a possible Quester, please don't hesitate to contact us with questions, thoughts, ideas or just to chat. We know that it can be difficult to ask for help, but the opportunity of becoming a Quester doesn't just mean requesting funds, it's ultimately a request for support, and we hope that's the part of Cooper's Quest that is remembered most.

January 7th, 2010:
Just in time for tonight's big game...Braden is heading home! :) Angels are truly among us, prayers are being heard and we are thankful for sweet moments with our Questers! 

I'm so happy to be the one to let all of you know that sweet Braden, although still a bit uncomfortable, is feeling better and working hard to get home and back on track! Thanks to our wonderful donors and generous friends, Cooper's Quest is able to do our part by purchasing a comfy, new bed so that Braden has multiple places to sleep, nap, lay and snuggle! We're waiting to hear what else we can help with once things have settled a bit.

Thank you all for your prayers, support, and worry. I know that the friends of Cooper's Quest can move mountains. Please continue to keep Braden's recovery in your prayers, but this evening will you do me another favor? Let's send a prayer to all of the children of fire fighters, police and ems, that might be struggling with special needs? Here's to all the potential Questers out there; may you find the strength and courage that our Questers remind us of daily! 

Happy Questing & Hook 'Em Horns!
Nicole

January 6th, 2010:
Happy New Year!  
I had every intention of posting the latest and greatest after the holidays, and here it is January 6th!  Unfortunately, instead of sharing a message of glad tidings and all that we were able to accomplish with Cooper's Quest last year, I'm begging for prayers and well wishes to our sweet Quester Braden! In order to maintain Braden and the Brown Family's privacy, I won't go into detail of their trials and tribulations, but I just hope that this message reaches all of you and that today on the 6th of January, you grab your loved ones and tell them just how truly special they are.  

Please take a minute today and send some extra-prayers and warm wishes to CQ's favorite 3 year old: Braden Lee Brown! This little boy that has an immeasurable amount of strength and courage!

Always remember: "Life is not measured by the number of breaths we take, but by the moments that take our breath away." - Anonymous

December 11th, 2009:
"Oh baby it's cold outside!"
We have some great news!!! Our latest fundraiser name has been selected and we'd like to thank our dear friend Jamie Lavas for her creative energy in coming up with it! We will be sending her that $100 gift certificate and get working on this new project! 

Also, we've started working on our next Austin Cooper's Quest event! HOORAY! If anyone would like to volunteer their time on a committee for the event, please send me an email (nbenton@coopersquest.org) and let me know!
Hope you're all getting ready for the festive holidays that are right around the corner! I hope you are all enjoying the twinkle of the lights, the warm laughter from loved ones and the over all cozy feel of the holiday itself!

November 23rd, 2009:
Thanksgiving is just around the corner! Have you already thought about all of the things that you are thankful for?
This is by far my favorite time of year. I am so appreciative and constantly amazed by every person that leaves footprints on my heart, and this year Cooper and his Quest are number one on my list! 
I hope that your heart is full of all things pure and true this season. If you are having a hard time giving of your talents or treasures this year, why not give free hugs and smiles!? That should be easy enough! :)

In other news...we have changed our address!  Please update your address book with the latest and greatest:
Cooper's Quest
P.O. Box # 162611
Austin, TX  78716-2611

Happy Thanksgiving Friends!

November 2nd, 2009:
Happy Fall Y'all!!! 
It's been so beautiful in Central Texas the past week, I sure hope that it continues.  We had a great day yesterday taking part in the Susan G. Koman Race for the Cure as a Cooper's Quest Team! It was a fantastic way to spend some time together and help another important cause. 

Today though I've got some big news to share! We need some Cooper's Quest creative help and we're holding a contest!! Here are the details:


Cooper's Quest needs to think of a creative "name" to call a new fundraiser that we're working on. 
Typically once a year, or so, you see fire fighters on busy intersections with their boots doing something called "fill the boot" to raise money. Well a few of the area fire departments around Austin want to do this for Cooper's Quest now, instead of the non-profit that they have supported in the past. Here's the issue though...we can't call it the same thing and we need a new name. We want to create a new fundraiser based on the same idea. So...if you have any ideas send them to me (nbenton@coopersquest.org) by November 30th, 2009 and I'll put them in the running. We're going to give away a $100 gift certificate to the winner...ideas should include some way of collecting money with a "HELMET" or some other fire fighter thing instead of a boot.
Thank you for your help in advance. 
We are very excited of what this can bring to Cooper's Quest and are beyond thankful to the area departments that are willing to help in this way!  We are so lucky!

It is also very important to note that "Cooper's Story" was highlighted in a recent Dell Children's Hospital "Miracles" publication. It sure does make my heart skip a beat when I see or hear Cooper and I'm not expecting it. :) 


October 14th, 2009:
There is so much to say about the event at Firehouse Saloon in Houston on Sunday afternoon! The music was fantastic, the BBQ delicious, the company superb and the reason that we were all there...magical!!  I'd like to send personal hugs to all of the volunteers and donors,  a standing ovation to all of the musicians, hugs to Funky Monkey Photobooth, and high-fives to the bartenders and managers at Firehouse Saloon.  Cooper's Quest raised just about $12,000 dollars on Sunday and there are still some donations coming in! If you took a picture in the Funky Monkey Photo Booth and you'd like copies you can find the pictures online here (http://monkeytree.zenfolio.com/coopersquest).  
Here are just a few of my favorite pictures that I caught of the day...if you'd like to see the rest of them, take a look at the Cooper's Quest Group page on Facebook.
               
            FIREHOUSE SALOON                     
              
  BRANDON MCDERMOTT BAND                           MARK MILLER                                     THE DRAGLINERS                          

Cooper would have loved the music benefit at Firehouse Saloon...

October 1st, 2009:
I just saw this SUPER COOL news on the CQ Facebook page and wanted to share it with everyone I could! If you've got a bike and you're looking for something awesome to do on Sunday before the event in Houston, check this out!

Please join Brazos Cycles & ATV'S on  a ride to honor and raise additional funds for Coopers Quest Music Benefit. 

Weather permitting, registration will start 11am, kick stands up at 12noon.

We will ride to Brazos Bend State Park, on to Rosharon, Arcola, up to Stafford and on to The Firehouse Saloon for the benefit. 

We are collecting a $10 per bike registration/donation fee. All funds collected will be given to Coopers Quest.

I am so excited to see another group of good-hearted people SPREADING COOPER'S QUEST! 

Looking forward to the celebration in Houston! 


September 17th, 2009:

I've been having a little technical difficulty trying to upload the flyer for the upcoming Houston event onto the website, but I think I finally got it! :)
By the way, we've got raffle tickets for sale so keep your eyes peeled because there are some awesome items in the pot! 
Here's just a taste:
    • 32" LCD HDTV
    • Two Southwest Airlines round trip passes to any SWA city. Value - $800
    • New 8G ipod nano with video. Value - $160
    • Plus much more
As an added treat, there will be a PHOTO BOOTH there giving us all a little memory to take home from such a great event! 
Oh and the munchkins are welcome too! Kids 5 - 12 are $5/each and 4 & under are FREE!!!
SEE YOU THERE! 

August 25th, 2009:

It's funny, as summer ends and signs of fall begin to sprout, time seems to fly and crawl all at the same time.  

Our friends in Houston will be holding a Cooper's Quest Celebration at Firehouse Saloon on October 11th from 2pm to 7pm. We're very excited about visiting a new town and having the opportunity to hopefully meet some new Questers there. If you're in the area, please come join us and spread the word to everyone you know! Also, if you have someone in mind to be a Quester, please let us know!  More information will be coming to us soon, so keep your eyes and ears open.

On a side note, since I'm sure a lot of you have Cooper in your thoughts daily, I have to point out that we're finding signs of Cooper's contagious smile at every turn it seems. There's been conversations with dragonflies, secrets shared with a duck, shooting stars and even some visits from a local frog! :) Keep your heart open and you'll notice them too!


July 30th, 2009:
I thought it was a good time to share some pictures of the newest Big Brother: Braden Brown! :) 
Check out this handsome Quester and his new baby sister Rylee! 

  


July 23rd, 2009:
Looks like Cooper isn't taking a break from his Quest! And neither are we!! Keep your eyes open for Coop to be spreading more Quest News of upcoming events and ideas soon!

  

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Brave toddler loses battle with genetic disease

July 15th, 2009 · No Comments · news

Cooper Reid Wilson, 2, lost his long battle with GM1 Gangliosidosis, a fatal genetic disease, on July 8, just 11 days after his birthday.

Cooper was the son of Westlake Fire Department district chief David Wilson and wife Michelle Wilson. A celebration of his life was held at Tarrytown United Methodist Church in Austin yesterday. 

Tim and Nicole Benton, friends with David and Michelle Wilson since their days at Westlake High School, organized a concert on May 10 at the Nutty Brown Café to benefit Cooper and other terminally ill children of police officers, firefighters and emergency medical workers. The four friends joined together to create Coopers Quest as a legacy for Cooper and a way to help other families struggling with their children’s medical costs.

Cooper leaves behind his parents, grandparents, Darlene Wilson, Danny and Diane Wilson, Nancy Perkins and Philip Perkins; his uncles, Derek and Dustin Wilson and Scott Perkins; and his godparents, Tim and Nicole Benton.

In lieu of flowers, the family requests donations be made to Cooper’s Quest at coopersquest.org.

http://www.westlakepicayune.com/2009/07/15/brave-toddler-loses-battle-with-genetic-disease/

July 17th, 2009:
Thanks to everyone that joined us in celebrating Cooper's two years at his Memorial Service on Wednesday, July 15th. 

There aren't words to describe how moving the service was.  I'd like to take a moment to give a huge thanks to Autumn Boukadakis for performing on Wednesday, a song that beat a beautiful tune to all of our hearts.  If any of you have the opportunity to see her live around Austin or in your home town, please show her the support that she's given to Cooper and Cooper's Quest!  Godspeed (Sweet Dreams) was the song that she performed, I know that a few of you have asked.  Autumn, you are a true treasure to Cooper's Quest!

We'd also like to thank American Color Labs for helping us get the large digital cut-outs of Cooper in time for the service. 

Finally, we could never leave out the enormous thank you's to Lisa at Now and Then Photography for her help in secretly capturing a few of the sweet sentiments that we tried to fill the church with. 

"Life is not measured by the breaths we take, but by the moments that take our breath away."
Cooper, you will continue to take our breath away.  
I am confident that your magic has only just begun.  


July 13th, 2009:
Instead of using my own words today, I thought that Cooper's obituary said enough for all of us. We miss you Coop!

Cooper Reid Wilson
Cooper Reid Wilson Our baby boy peacefully earned his angel wings on July 8, 2009, just 11 days after his 2nd Birthday. He was born in Round Rock, Texas, to his parents, David and Michelle Wilson. Cooper, Life is not measured by the number of breaths we take, but by the moments that take our breath away. You took our breath away June 27, 2007, when you entered this world and fell into our arms. Our hearts were yours. Though your life was short, you taught us how to live, to live in the moment, on your own time. Your crooked grin, beautiful smile, and big blue eyes touched everyone you met. Your contagious laugh would make everyone stop and say, "Do it again!" You loved to be outside. To have the sun in your face and breeze in your hair always made you smile, which is why horseback riding, boating, and swimming always topped the list. We will always miss you, but know that you are finally able to run, climb trees, and eat whatever your heart desires. We love you so much, Mama and Papa. Cooper leaves behind his parents; his grandparents, Darlene Wilson, Danny and Diane Wilson, Nancy Perkins, and Philip Perkins; his uncles, Derek Wilson, Dustin Wilson, and Scott Perkins; and his Godparents, Tim and Nicole Benton. We are very grateful for our pediatric sub-specialty team at Dell Children's, Dr. James Gibson, Dr. Jeffrey Kane, Dr. Jason Fullmer, and Dr. Kathleen Sanders; our Palliative Care Team, Allison Baker, Katie Gardner, Trisha Tatum and Dr. Sarah Legett; and our support team at Hospice Austin. Cooper's life will be celebrated at 2:00 p.m., Wednesday, July 15, 2009, at Tarrytown United Methodist Church, 2601 Exposition in Austin. In lieu of flowers, the family would like contributions made in Cooper's memory to Cooper's Quest, a legacy created to support other children and families who face similar challenges, at www. coopersquest.org.

July 10th, 2009:
I sit trying to find the right words, and I know that Cooper will guide me. 
 
For those of you that have not heard  of Cooper's passing on Wednesday, July 8th, I apologize if this news comes as a surprise. Cooper peacefully passed in the sunshine of the afternoon while enjoying the outdoors with his loving parents and his dog Abbi.  The moment is beautiful, truly moving, but it is one cherished deep in the heart of David & Michelle Wilson, for their own memories.  
 
I know that David & Michelle will use their caringbridge website as they wish to express their thanks of prayer and love, but I will say that from my view, the people that Cooper touched and impacted is remarkable. As parents though, there was never a more perfect fit, then that of Cooper and his Mama and Papa. 
 
At this time, the family is still working on the specifics of a memorial service to celebrate Cooper, and we will definitely pass on the information when we can. I have had a lot of questions about what can be done, making meals, etc. for support. Right now, the only thing to do is to say your prayers and live in your own moments. Cherish the memories and moments that we had with Cooper and learn from the many lessons that he taught us.  

The Very Hungry Caterpillar

In the light of the moon a little egg lay on a leaf.
One Sunday morning the warm sun came up and -pop- out of the egg came a tiny and very hungry Caterpillar. He started to look for some food.
On Monday he ate through one apple, but he was still hungry, on Tuesday he ate through two pears, but he was still hungry, on Wednesday he ate through three plums but he was still hungry, On Thursday he ate through 4 strawberries but he was still hungry, On Friday he ate through 5 oranges but he was still hungry. On Saturday he ate through one piece of chocolate cake, one ice cream cone, one pickle, one slice of swiss cheese, one slice of salami, one lollipop, one piece of cherry pie, one sausage, one cupcake and one slice of watermelon, that night he had a stomach ache. The next day was Sunday again and the caterpillar ate through one nice green leaf and after that he felt much better. Now he wasn't hungry anymore - and he wasn't little any more. He was a big fat caterpillar. He started to build a small house called a cocoon around himself. He stayed inside for more than two weeks. Then one day he nibbled a whole in the cocoon and pushed his way out, and..... he was a beautiful butterfly. 
by Eric Carle



July 3rd, 2009:

On behalf of Cooper Reid Wilson and his family, I’d like to give you this update about our little man Coop.  
 
Cooper celebrated his 2nd birthday on June 27th which is a huge milestone in his fight against GM1: Gangliosidosis. He was surrounded with friends in a trip to the fire station with cupcakes, had a Grandparents celebration at his home with silly hats and then took a road trip to visit his family in Houston with a giant birthday cake.  Finally to tie it all together, he was able to get some quality family time at the beach in Port Aransas.  Cooper loved the breeze of the ocean and enjoyed the serene sounds of the waves crashing. He took a dip in the salt water and played with his feet in the sand.   With the amazing donations from Cooper’s Quest, Cooper was able to stay in a room just a few steps away from the ocean and could sit comfortably in his room and watch waves rolling in while eating breakfast.  
 
Up until now, this disease has gradually decreased Cooper’s physical strength and comfort.  After a very relaxing weekend spent celebrating and taking in some special moments, Cooper’s disease fought back. Since their return from the beach, life has been progressing rapidly for Cooper and his family.  Coop is having troubles breathing and although his mental strength is inspiring to us all; physically he is facing bigger challenges. His parents are working diligently, night and day, to give him every comfort possible, and the prayers for peace within his little body are tremendous. 
 
I know that all of the wonderful friends and supporters of Cooper and Cooper’s Quest want to do everything in their power to help Coop and his family, but at this point the way to help is through prayer and love.  Cooper is resting with his family and the best thing that we can do to show our support is by being thankful for every moment that we are given. At this time, I would ask that you respect the family’s wishes for time with Cooper.  They would like to spend these moments focused on him, rather than answering phone calls and emails or getting visitors.  If there is something specific that you have a question about, please don’t hesitate to contact Cooper’s Quest.  
 
Cooper, you are a gift to us all; a little piece of magic all by yourself.  Your courage in fighting an incurable disease is incredibly moving and powerful.  Thank you for teaching us to live inside each single breathe. 
 
Gratefully Yours, 
Nicole Benton
Cooper’s Quest

June 30th, 2009:

What a big day for our Questers! 

Braden became a big brother to little sister Rylee Jo! Pictures to come of those two little Brown's soon I hope!

Cooper came back today from a trip to the beach! We do have a picture that we were able to get our hands on of that one. Doesn't Coop look like a Beach Boy! :)
       

HAPPY QUESTING!!



June 27th, 2009:
Happy Birthday Cooper! What a special day for you! It's the BIG 2!
Here's to you Little Man! May your day be a wonderfully, happy moment for you and your family! We'll be thinking of you!

June 16th, 2009:

A quick note to send a huge Thank You to the Students, Teachers and Staff of Running Brushy Middle School for their generous donations and hard work.  We received a wonderful surprise in the mail and wanted to make sure that we acknowledged all of their efforts and big hearts! Thank you for spreading Cooper's Quest and sharing in the magic! 

Something else to report:  Today, our Quester Braden Brown stood on his own in his crib! Whoo hoo Braden! We're so happy for your wonderful accomplishment! I'm sure your Mom & Dad's wheels are spinning about what big hurdle you're going to accomplish and surprise them with next! 

Happy Questing! 

June 1st, 2009:

Summer seems to be officially here in Austin these days! On Friday I was able to meet up with our Questers and their Moms for lunch and fun by the cows at the Arboretum. The boys seemed to enjoy the cows, but were ready for some cold A/C by the end of the trip too!  Next time I think we'll definitely make time for frozen yogurt or a snow cone! :)  Happy Summer!



May 12th, 2009:

Cooper's Quest Music Benefit was a huge success! We don't have a Grand Total as of yet, because the wonderful donations are still coming in, but we have surpassed the $15,000 mark! This is a fantastic number for our first event! We had a great time on Sunday celebrating life with good friends, good food and awesome tunes! Thanks again to everyone that made it out and to all of our event helpers! I have pictures to post, but there are a lot of them.  Here are a few of my favorites:


May 7th, 2009:

The Westlake Picayune had a great article this week featuring Cooper's Quest! I scanned the article from the paper so that you could see the picture, but the article came out fuzzy, so if you'd like to read it more clearly you can find it here:  http://www.westlakepicayune.com/2009/05/06/whs-graduates-stage-concert-to-help-terminally-ill-children/


I love seeing COOPER'S QUEST in the community! :) See you all on Sunday!

May 4th, 2009:

Cooper's Quest was interviewed over the weekend for News 8 Austin! It was a wonderful experience and we were so excited to spread The Quest!  Dr. Sarah Legett, Cooper & Braden's Palliative Care Doctor, joined me in the interview and we were so thankful that she could come and put the medical spin on the idea behind Cooper's Quest.  My favorite word that she used in the interview was MILESTONES!  Our Questers are not reaching the same milestones as other children, but they do have their own set of milestones, that's for sure!  If you'd like to see more about our interview, or watch it if you missed it, follow this link to News 8:  http://www.news8austin.com/content/your_news/?SecID=278&ArID=239506

Our big benefit is right around the corner!  Hope you're getting your celebration shoes ready! :)

April 28th, 2009:
 
Rumor has it that Cooper's Quest will be appearing in an upcoming issue of The Westlake Picayune! Keep your eyes peeled for our sweet Questers! We're so proud of them!  Once we see the issue, we'll post the update here!
 
 
April 27th, 2009:
 
Cooper and Braden have been going on some awesome Quest Field Trips recently.  What fun!!!
 
         
 
A little sunshine and outdoors with friends always makes for a good day! :)
 
 
April 23rd, 2009:
 
May 10th will be here soon and I feel like there is a constant buzz in the air.  If you Google 'Cooper's Quest' these days, you'll see that there really is nothing stopping The Quest!  
 
Raffle tickets are flying like hot cakes and we couldn't be more excited!  To keep the buzz going, I've decided that we need a little give-away!  So, the best three stories of someone finding something related to Cooper's Quest unexpectedly will get a free raffle ticket with their name on it.  We want to see just how far and wide The Quest is reaching! So if you come across something related to the May 10th benefit or Cooper's Quest unexpectedly, send me an email to nbenton@coopersquest.org.  The best three emails from now until May 1st will get automatically entered into the drawing.
 
Let the challenge begin...
 
 
April 15th, 2009:
 
Another post already? Well we have good news! The raffle tickets for the benefit on May 10th have arrived!!  If you are interested in selling them prior to the event, please contact Nicole (nbenton@coopersquest.org).  The tickets are $3 each, or 2 for $5 and you don't have to be present to win.  If, you don't get a chance to get one before May 10th, don't worry, you'll have the opportunity to get in the drawing at Cooper's Quest Music Benefit!
 
Prizes include:
** A pair of 3-day passes to Austin City Limits Festival (October 2nd - 4th, 2009)
**Two IPod Shuffles
**$100 HEB Gift Certificate
 
 
April 14th, 2009:
 
This month, thanks to generous donations that we've received, our Questers were able to do some very important things!
Cooper was able to attend the NTSAD conference in Boston, MA!  This special trip included his first airplane ride and he even had some time to visit Fenway Park!  We can't wait to hear more stories from Cooper and his family!
 
                                    
 
Braden, our newest Quester, took a much anticipated trip to Houston to get some tests done.  Our thoughts and prayers are with Braden and his family as they wait for news and results.  Aren't you so happy that Braden has that DVD player to help relax during those tests! I love that he's kickin' back, even when I'm sure it's not all that comfortable!
 
                                    
 
Happy Spring to our Questers and all of our CQ Friends!
 
 
March 31st, 2009:
 
I wanted to share some pictures of our Questers today.  Enjoy!
 
                                                        
Crystal, Braden, Michelle & Cooper                          Braden Lee Brown
 
                                                  
Cooper at Hippotherapy                                            
 
We are thankful for these kind of moments! :)
 
 
March 31st, 2009:
 
Hooray for online donations by credit card!!!  If you've been waiting to make a donation by credit card, you don't have to wait any longer!  Check out the Donation page and click DONATE to make an online donation via credit card.  Hopefully we'll be able to have a link to purchase tickets to the fundraiser soon too!  Thank you for being patient with us while we work out the specifics in online donations!
 
 
March 30th, 2009:
 
We'd like to introduce our newest Quester to the Cooper's Quest friends and family out there. Please welcome Braden Lee Brown and his family to our organziation!  We are really looking forward to doing what we can for sweet Braden and his family and we look forward to their friendship! You can find out more about Braden on his CaringBridge page which is linked on the Quester page!
 
Thanks for joining the Quest Braden!  Good luck in Houston at your appointment. We will be thinking of you and cheering you on!
 
 
 
March 17th, 2009:
 
We are so excited about the announcement of Cooper's Quest Music Benefit! It's going to be a wonderful family-friendly day!  If you haven't seen the invitation, check it out! Thanks to Shannon Lilie for her fabulous design work! We're so thankful for her creativity!
The CQ Board is working diligently on upgrading our current donation system to include credit card donations as well.  Stay tuned for that new feature soon!
 
Happy St. Patrick's Day Quest Friends!